Wendy
Wednesday, July 27, 2011
Saying goodbye.....
I don't think anyone reads this anymore and mostly it's because I haven't written anything here. If you are still checking back to see if I have written anything and are disappointed that I haven't and want me too, let me know because I have a lot to blog about!
Sunday, April 24, 2011
Dreaming
I have had 2 dreams the past 2 nights. I was pregnant in both of them and knew that there was something wrong with the baby first thing. I could feel the heart beat in my hand and when I went to have a sono, they heart never closed and was on the outside of the body. This dream continued the next night, with the baby being born, but waking before I actually saw the baby.
When I woke up this morning, I realized that these dreams symbolized a re-birth of me with my heart on the outside, no longer keeping pain and hurt inside, but feeling safe to let my feelings be known. Not the everyday Wendy that everyone knows.
Keep updated as I am going to try and write more and this is my journaling. I don't think anyone reads this anymore since so much times goes by before I write. I
I am still in pain and I think that keeps people away from listening to what I have to say. I want to try and be more introspective. Yes, I have pain everywhere. Physical, emotional and psychological. Should be an interesting ride. I am also going to try and quilt a little each day. If I remember how! LOL!
Wendy
Wednesday, April 13, 2011
Wishes do come true
I was reading back through old posts and can't believe how depressed I sound. Maybe now that Spring is here, I am feeling better. The panic attacks have decreased and I feel less depressed. Maybe it's because I am dealing with another crisis in my life? LOL!
I had to have an MRI on my back to determine whether or not the channels were big enough for the stimulator and it came back with some suspicious finding that required me to have a bone scan. I had that done and now need to meet with an orthopedic/oncologist to see if I do indeed need to have a needle biopsy.
SHIT!
Wendy
Thursday, March 10, 2011
Deep Dark Depression
For those of you who have been depressed, know that it's different than being sad. I started with this depression way before my mother died. Way before she got sick. Her death has exasperated this depression in a way that I never thought was possible. I have made a counseling appointment. I can't go on anti depressant meds because they all make me sick to my stomach. I was tried on a medication for my OCD that made me sick also.
I feel so helpless. I just want to sleep and sleep and sleep. As long as I am sleeping then I don't have to worry about, or think about anything. ANYTHING. And I really don't have anything to be depressed about. Yes, I have something to be sad about. But, I have a wonderful partner who picks up the lion's share of things around the house and taking care of Katie. I have 2 beautiful children, who, while they have their issues, are doing OK where they are. Gillian is doing well in college, although she is struggling with some really hard classes. I give her all the credit in the world for even attempting them. She is one strong woman! Katie, while she has had some emotional issues (and I wonder if she gets them from me) does wonderfully in school with her school work. It's the peer issues that we have to work on. She wears her heart on her shoulder that one!
Anyway, I needed to get my feelings out on "paper" although I don't think I did a very good job with this. I am leaving tomorrow to get Gillian and then we are staying in Albany overnight with some friends before leaving Saturday AM to get home. I have my first appt on Sat Noon and don't want to miss it. So, maybe I will have more to tell after that!
Wendy
I feel so helpless. I just want to sleep and sleep and sleep. As long as I am sleeping then I don't have to worry about, or think about anything. ANYTHING. And I really don't have anything to be depressed about. Yes, I have something to be sad about. But, I have a wonderful partner who picks up the lion's share of things around the house and taking care of Katie. I have 2 beautiful children, who, while they have their issues, are doing OK where they are. Gillian is doing well in college, although she is struggling with some really hard classes. I give her all the credit in the world for even attempting them. She is one strong woman! Katie, while she has had some emotional issues (and I wonder if she gets them from me) does wonderfully in school with her school work. It's the peer issues that we have to work on. She wears her heart on her shoulder that one!
Anyway, I needed to get my feelings out on "paper" although I don't think I did a very good job with this. I am leaving tomorrow to get Gillian and then we are staying in Albany overnight with some friends before leaving Saturday AM to get home. I have my first appt on Sat Noon and don't want to miss it. So, maybe I will have more to tell after that!
Wendy
Saturday, March 05, 2011
The Funeral
Seeing my mother in her casket was a surreal experience. It looked like her. Really looked like her. You almost wanted to see if she was still breathing. But she mostly looked like she was at peace. We had to seperate calling hour times and lots of friends and family came to give us their best. The next day, the pastor from my church came and did a wonderful job of delivering a eulogy of my mother's life. The hardest part that day was seeing her again in her casket and then leaving the room for them to close it and then realizing that we were never going to see her again. Ever.
This is where I am ending. I am in a place of raw pain and loss right now. As the days go on and I feel as though I can write about my feelings I will. But for now, they are inside, not ready to be released.
Wendy
This is where I am ending. I am in a place of raw pain and loss right now. As the days go on and I feel as though I can write about my feelings I will. But for now, they are inside, not ready to be released.
Wendy
The Passing
On February 18, 2011, my mother passed away at the age of 63. A lifetime smoker, she was diagnosed with emphasema and subsequently COPD by the time she was in her late 40's. By the time she was 50, she was on oxygen full time. We knew our time with her would be short. We just didn't realize how short.
On February 1st, Mom went into the hospital and was diagnosed with the Flu. She hadn't been out of her apartment in months so we can only think that someone brought it to her. Doesn't matter in the long run. She was taken by ambulance to the hospital and put into a regular room. Something to note...it wasn't unususal for Mom to end up in the hospital once a winter, but the previous two winter's she remained unhospitalized.
Within a day Mom was moved to MICU (Medical Intensive Care Unit) as she required the use of a BiPap machine to help her breathe and all sorts of other meds to keep her alive. She met with my sister, who became her Health Care Proxy and Mom stated that she didn't want to be intubated or any life saving measures. At that time, my Mother's MD took us out to the computer where he showed us my mother's recent CT scan of her lungs which we basically empty caverns. He couldn't believe that she had lived as long as she had. Looking back on it now, I can tell that Mom was moving less and less and could barely take care of herself. Other than going to the bathroom and getting herself a frozen meal, she could barely get herself off the couch. At any rate, the MD said that he did not see her being able to leave the hospital alive and asked if we could have a meeting with our siblings to talk about where things were and what we wanted to tell Mom. We had a meeting that afternoon and my sister Tammy went with the MD to talk with Mom. Mom decided to stay on BiPap and meds and fight till the end. She then insisted that we all go home and not come back that night because she wanted to sleep.
Later that night, my youngest sister Laura came back up only to find that Mom had decided to go off the BiPap and discontinue all her medications. She quickly called my sister Tammy, her health care proxy, who came up to the hospital and called the rest of us siblings. We had no idea that what we thought was going to be an overnight death watch, like it was with my grandfather, would turn into a 15 day death watch.
The next morning, they moved my mother downstairs to the palliative care floor. When she got down there, we thought she wasn't going to survive the move and had a thready pulse and was barely breathing. My grandmother started to cry and rub her head. She came back.
My 2 sisters and I pretty much stayed at the hospital night after night, rotating who slept when in case mom needed something. For the first 7 days or so, she was sipping diet pepsi and eating bites of food. Someone had to stay awake to take care of her. The last 2 days she slipped into a coma and was pretty unresponsive. On Friday, February 18th at 11:30AM she took her last breath. It was very anticlimatic. She just started breathing shorter and shorter breaths and finally took one last breath and that was it. We called for the nurses and one came and declared no heartbeat. The floor nurse came and declared the same thing. The MD had just been in the room not 2 minutes before her last breath and he came back and just told us how sorry he was. My sister's husband, who had and still is, handeling all her affairs called the funeral home to let them know they could come and get her and we stayed with her a little while and left the hospital. We met with the funeral home later that day and all of us agreed with each other about what casket she should be buried in and the color of her casket. Blue was her favorite color. We agreed that 2 cards she received along with a letter that Katie wrote her would be buried with her along with a picture of every one of her grandchildren. We had a lot of work to do to get ready for the funeral and calling hours.
Wendy
On February 1st, Mom went into the hospital and was diagnosed with the Flu. She hadn't been out of her apartment in months so we can only think that someone brought it to her. Doesn't matter in the long run. She was taken by ambulance to the hospital and put into a regular room. Something to note...it wasn't unususal for Mom to end up in the hospital once a winter, but the previous two winter's she remained unhospitalized.
Within a day Mom was moved to MICU (Medical Intensive Care Unit) as she required the use of a BiPap machine to help her breathe and all sorts of other meds to keep her alive. She met with my sister, who became her Health Care Proxy and Mom stated that she didn't want to be intubated or any life saving measures. At that time, my Mother's MD took us out to the computer where he showed us my mother's recent CT scan of her lungs which we basically empty caverns. He couldn't believe that she had lived as long as she had. Looking back on it now, I can tell that Mom was moving less and less and could barely take care of herself. Other than going to the bathroom and getting herself a frozen meal, she could barely get herself off the couch. At any rate, the MD said that he did not see her being able to leave the hospital alive and asked if we could have a meeting with our siblings to talk about where things were and what we wanted to tell Mom. We had a meeting that afternoon and my sister Tammy went with the MD to talk with Mom. Mom decided to stay on BiPap and meds and fight till the end. She then insisted that we all go home and not come back that night because she wanted to sleep.
Later that night, my youngest sister Laura came back up only to find that Mom had decided to go off the BiPap and discontinue all her medications. She quickly called my sister Tammy, her health care proxy, who came up to the hospital and called the rest of us siblings. We had no idea that what we thought was going to be an overnight death watch, like it was with my grandfather, would turn into a 15 day death watch.
The next morning, they moved my mother downstairs to the palliative care floor. When she got down there, we thought she wasn't going to survive the move and had a thready pulse and was barely breathing. My grandmother started to cry and rub her head. She came back.
My 2 sisters and I pretty much stayed at the hospital night after night, rotating who slept when in case mom needed something. For the first 7 days or so, she was sipping diet pepsi and eating bites of food. Someone had to stay awake to take care of her. The last 2 days she slipped into a coma and was pretty unresponsive. On Friday, February 18th at 11:30AM she took her last breath. It was very anticlimatic. She just started breathing shorter and shorter breaths and finally took one last breath and that was it. We called for the nurses and one came and declared no heartbeat. The floor nurse came and declared the same thing. The MD had just been in the room not 2 minutes before her last breath and he came back and just told us how sorry he was. My sister's husband, who had and still is, handeling all her affairs called the funeral home to let them know they could come and get her and we stayed with her a little while and left the hospital. We met with the funeral home later that day and all of us agreed with each other about what casket she should be buried in and the color of her casket. Blue was her favorite color. We agreed that 2 cards she received along with a letter that Katie wrote her would be buried with her along with a picture of every one of her grandchildren. We had a lot of work to do to get ready for the funeral and calling hours.
Wendy
Friday, January 14, 2011
OCD
Which for those of you who don't know what that is is Obsessive Control Disorder and I have it in a BAD way! I went to the MD yesterday and she started me on a new medication that should help in a few weeks. I can't stand the thoughts that keep going through my mind over and over and over.
Here is an example of my mind the past week. Katie's teacher was sick on Tuesday. Katie came home from school on Tuesday saying her teacher had a stomach ache and felt like she was going to throw up. I immediately went into panic mode. If Katie picks up what her teacher has, then she could give it to Gillian, who is going back to school on Sunday.
For those of you who don't know, the week before finals, Gillian caught a bug and was in the hospital for 4 days. She has no large intestine because of an illness she had when she was younger, so when she gets a stomach bug, it turns into a BIG thing requiring hospitalization. So, you can imagine my panic. I am trying to inforce hand washing and keeping the girls apart. I am thinking that Katie would have come down with this bug by now, because the net says that it usually presents itself between 24-48 hours which we are past now. I will feel much better tomorrow if she doesn't get it. And the nurse at the MD's office said that the chance of Gillian getting it are even smaller than Katie.
Does that help? Nope! Still runs around my mind over and over and over again. Can I do anything about it? Nope! Do I know this? Yes! Does it matter? Nope! And if it wasn't this, it would be something else.
So, I start the new med tonight and will go up for the next few weeks until I go back to the MD again. If there are no adverse effects, then I will go up to the recommended dose. The only thing that sucks is that it could be a month or more before I feel/relief. ARGH! I want it gone NOW!
So, I am trying to read as much as possible and not let things bother me. The more I sleep and watch TV, the better I feel.
There you have it...I have OCD!
Later,
Wendy
Here is an example of my mind the past week. Katie's teacher was sick on Tuesday. Katie came home from school on Tuesday saying her teacher had a stomach ache and felt like she was going to throw up. I immediately went into panic mode. If Katie picks up what her teacher has, then she could give it to Gillian, who is going back to school on Sunday.
For those of you who don't know, the week before finals, Gillian caught a bug and was in the hospital for 4 days. She has no large intestine because of an illness she had when she was younger, so when she gets a stomach bug, it turns into a BIG thing requiring hospitalization. So, you can imagine my panic. I am trying to inforce hand washing and keeping the girls apart. I am thinking that Katie would have come down with this bug by now, because the net says that it usually presents itself between 24-48 hours which we are past now. I will feel much better tomorrow if she doesn't get it. And the nurse at the MD's office said that the chance of Gillian getting it are even smaller than Katie.
Does that help? Nope! Still runs around my mind over and over and over again. Can I do anything about it? Nope! Do I know this? Yes! Does it matter? Nope! And if it wasn't this, it would be something else.
So, I start the new med tonight and will go up for the next few weeks until I go back to the MD again. If there are no adverse effects, then I will go up to the recommended dose. The only thing that sucks is that it could be a month or more before I feel/relief. ARGH! I want it gone NOW!
So, I am trying to read as much as possible and not let things bother me. The more I sleep and watch TV, the better I feel.
There you have it...I have OCD!
Later,
Wendy
Saturday, January 08, 2011
Lazy days and Mondays.....
Always get me down! Too bad it's Saturday. And I am down. But I have no clue why. I want this Spinal Cord Stimulator installed in my back already, but sooo not looking forward to the surgery. They always get your meds messed up.
I really, really want to quilt. But there is no way that I can stand up and cut out fabric and there is no way that I can sit to sew for any length of time. Another BIG obstacle is the fact that I have yet to clear out Gillian's room to make it into a sewing room. The more I think about it, the more it doesn't make sense. She is home at least once every other month, which would mean time that I wouldn't be able to get in there to sew. So, what to do? I just don't know. I can't get down the cellar stairs, so setting up a studio there is also out of the question. I will figure something out sometime. I have all the fabric sitting there waiting for me to make the top to my Nephew's quilt, not to mention the $1,000's of fabric waiting to me made into quilts. My friend Val's daughter just turned 1 and I still haven't started her baby quilt. Maybe by the time she goes to college?
Anyway, I am off to a birthday party for a friend of Katie's and the parents happen to be our friends as well. Tomorrow is my neice's birthday party right after church and Monday will be a massage and nap day. I will need it.
Later,
Wendy
I really, really want to quilt. But there is no way that I can stand up and cut out fabric and there is no way that I can sit to sew for any length of time. Another BIG obstacle is the fact that I have yet to clear out Gillian's room to make it into a sewing room. The more I think about it, the more it doesn't make sense. She is home at least once every other month, which would mean time that I wouldn't be able to get in there to sew. So, what to do? I just don't know. I can't get down the cellar stairs, so setting up a studio there is also out of the question. I will figure something out sometime. I have all the fabric sitting there waiting for me to make the top to my Nephew's quilt, not to mention the $1,000's of fabric waiting to me made into quilts. My friend Val's daughter just turned 1 and I still haven't started her baby quilt. Maybe by the time she goes to college?
Anyway, I am off to a birthday party for a friend of Katie's and the parents happen to be our friends as well. Tomorrow is my neice's birthday party right after church and Monday will be a massage and nap day. I will need it.
Later,
Wendy
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